So tomorrow I go to a neurosurgeon to find out if he thinks I need to have decompression surgery. If he thinks that I do, the rest of the appointment will basically be us interviewing him to determine if I want him to do my surgery or not. Because of recent symptoms I’m seriously thinking surgery might be necessary because if CM goes untreated for too long it can cause paralysis. My CM flared up last July and has gotten progressively worse since then but the rate at which it is progressing scares me because it seems to be progressing so fast. I’m so tired of the headaches, numbness in my feet, sleepless
nights, nagging achiness throughout my entire body, and the whole host of other things that keep pestering me. I keep wondering if I will ever have a pain-free day…but I’m now convinced that my wish for a completely pain-free day is totally and completely impossible unless God performs a miracle which would be awesome!
So I’m guessing that if you read my blog very often you might wonder why I changed the layout. Here’s why: I was looking up the colors of wristbands for CM, FMS, and several other things. I found that blue is the color for Chiari malformation, purple is the color for Fibromyalgia syndrome, teal is the color for post traumatic stress disorder, purple is the color for pancreatic cancer, and blue and black are the colors for the loss of one’s father. For those who don’t know, I lost my father to pancreatic cancer, hence the previous references to pancreatic cancer and loss of a father. So that’s the story…I looked until I found a layout that included blue, black, teal, and purple. I’m not one for wearing wristbands but I figured I could color-coordinate for a while…then I’ll change it back to something that allows me to display some more of my photography.
Well, more updates to come soon…tomorrow is the day I go see Dr. Di (pronounced like “dee”) at Cleveland Clinic. He’s the neurosurgeon I mentioned at the beginning of the post. Ok I’m done for now. Thanks for the prayers but don’t stop…life isn’t over yet!
Praying for you & your mom on your trip Beth...can't imagine how scary all these decisions are. Know we are praying for you and although we don't understand the why of any of it, we certainly trust Jesus is with you and will never let go!
ReplyDeleteBeth, you and your mom are in my prayers. I did not know about these wristband colors.
ReplyDeletein case you all didn't know...wristbands are a way of raising awareness (especially in the younger community) just like ribbons do. most of them have 1 or more words typed on them, some just saying something like hope or peace or something like that but others will have the name of a cause on them and are a specific color that usually is the symbolic color of that cause...some causes have multiple colors worn together or have an alternative color if the standard color is not available. for instance, cranberry is actually the color for Fibromyalgia but burgundy and purple are alternative colors and for my profile purple worked best with the other colors i was using. an example of the multiple colors would be the loss of a father because blue and black are worn together for it and if the colors are worn as ribbons then the 2 ribbons would be placed back to back and probably glued together or something.
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